Showing posts with label a journey with mesothelioma. Show all posts
Showing posts with label a journey with mesothelioma. Show all posts

Wednesday, 14 August 2013

Weight and Eating

Not long until my lump is drained and maybe I can start living normally.  I have managed work 3 days now, only 3 hours, but by the time I have pulled files out from one shelf or out of my desk drawers, entered info on the computer, turned this way and that for the printer then to file what I've done etc my stomach feels like, well Hell.  I have worn some hipster jeans but after a while even they hurt, they sit just under the lump but now are forced down ward.  Those men you see with big bellies and their jeans hanging six inches lower than their backside, well that's now me, and I hate it!
 
I have written a few articles on and off for various websites over the years, always to promote what Mesothelioma is like.  Lately, I have had the privilege of being asked to write a few for MesotheliomaHelp which you can read by clicking here, they are similar to what I write on my own blog but not everyone with meso would ever find my blog let alone read it.  But the site also has different people writing on certain subjects and sometimes a different view point can make all the difference to what you think to what you know.  Why mention this, you are asking?  Well having this fluid in my stomach has made me feel ill some days and ok others.  I have gone on to lots of sites that detail ascities but not one says 'you may feel like' or 'if you feel like do this'.  Mavis, the Google Queen in our group found me a discussion group, one that was for ovarian cancer, the thread was now closed, but what disappointed me was that Macmillan information or Cancer UK don't say the how you will feel in much detail.  Yes they detail symptoms, but the symptoms are how to diagnose the disease not how to deal with it in a personal way.
 
Hubby has started the intense workout video's Insanity.  These are all cardio vascular exercises to rid him of his over large stomach.  He doesn't eat junk food but can devour a large packet of crisps in 5 minutes.  He had food poisoning, am sure I mentioned this before, and then lost weight before gaining lots and blew up to nearly 15\16 stone.  He lost a lot of that but his stomach has never gone and he blamed the poisoning for doing something to him.  His tops are stretched to the maximum!
 
 
 
I have never nagged my hubby but on the last holiday I saw what hubby will morph into in another few years if he kept his crisps and over eating up.  Finally he agreed to do something about it.  I once told him that if he suddenly went on a diet and lost all his weight and toned up after I died I would come and haunt him.  If he could do it to find a new wife he could damn well do it for his current one.  I think I got through to him.  So the menu plans have come out and even more healthy eating is currently taking place in our house hold.  Problem for me is that I am still not eating enough.  His stomach needs to shrink so instead of eating till he is full and bursting he is learning to eat until he is nearly full.  Me I have a little food and feel stuffed, example tonight one piece of broccoli, 2 oz filled steak and 2 new small potatoes, a few thin slices of mushrooms.  The dogs got a potato between them.  I have also consumed today 2 thin wafers and half a pork roll, yes the dogs got the other half.
 
I don't want that fight I had in 2011 where I had to gain weight because I had dropped so much.  It isn't easy for me to eat a lot, that's why I didn't think I had middle age spread.  I knew I was eating a lot of liquorice and thought that was what caused my small bump at the front, now I know it was fluid slowly building up.   
 
On chemotherapy you don't really want to eat, either due to nausea, sore mouth, sore oesophagus or loss of appetite.  Your stomach shrinks and although it is something that can grow and stretch, hence we get fat because we overstretch it by overeating, it is hard when it has become use to eating very little.  Not eating enough makes us lethargic and down, but it also does other damage, our organs aren't receiving the nutrients they need to fight off illness or keep our organs healthy.
 
Taking the water tablets as well I have also noticed how thin the rest of my body is going, like your insides are being sucked dry.  My skin isn't as radiant, ok I know I am old but my skin has always been soft, now it feels hard and dry.  It seems they are draining me of fluid but not from the right spot!  Which brings me to any other worry, once the lump goes (maybe I should give it a name?) and I am to stay on the tablets will my insides keep getting sucked dry?
 
Wow I've written an essay not a blog.  So where do I end this blog, if you aren't eating enough ensure you take vitamins (something I mean to do everyday but forget!), eat small and often (not always easy to do) but these are essential to us.  Instead of fighting this battle of food alone try and get the family involved too.  Work on menu's that if you don't eat a lot you are getting some of the 5 inside of you.  Veg and fruit are a must, carbs and protein are important.  500 Calories can be made up of healthy and filling food without the plate looking overloaded but a good meal to feed each part of your body.
 
There are many people currently fighting this cancer, the treatments are giving them so many problems but they are battling on.  At healing today I asked for a rainbow of healing to fill each and every one of us, whether you believe or not there is no harm in asking for healing in your mind... you never know a couple of those pains might just disappear.
 
On that note I bid you all good night. 
 
 
 
 
 
 

Monday, 16 July 2012

Runny Nose

I have noticed that when I do some kind of exertion my nose runs, I noticed this when out walking the dogs but put it down to the cold temperature but here I haven't that excuse. Everyday I carry the bag downstairs and then my nose is running for a good hour. yesterday I did a really stupid thing, armed with our beach bag and four towels I climbed two flights of stairs from the poolside up to our room. By the time I reached the top of the 1st flight I was suffering but kept going. when I reached the room I could hardly breath, my chest thought it was caving in and my heart was pumping so fast. Finding the trusted inhaler I didn't think I had enough wind in my sails to take it. I got caught by hubby, who had left me to go to the shop, he went banana's at me for not taking the lift and said I couldn't be left alone. I tried to tell him that we have to push ourselves occasionally to see if we have declined in health!

The sun is helping the cancer pains but the rock hard beds, only ever found in Spain, are killing my back. It's quite breezy this morning here, I really don't think the weather throughout the world knows what it wants.

Hopefully heat in another hour or two and back to relaxing on the sunbed with kindle in hand and another book read. There's a strange thing too, the fiction book
I'm reading is on about Mesothelioma fibres. I think it's the first time I have ever read its name in something fictional.

Breakfast is calling ..

Sunday, 8 July 2012

My Book a fantasy as no mesothelioma allowed

Having spent most of June writing a book and then proof reading it, I found I can download it to my Kindle so I will be taking it on holiday with me. For the first time since letting my fingers fly over the keyboard or my eye's just look for mistakes I am actually going to read it as I would any other book. 

Only one person has read it and is in the process of finding out how to publish it, another friend has just started reading it (had to have something while she is handicapped with her foot in plaster).  If it was about meso then it would be quite easy but I have written something to take my mind off this cancer.  Maybe one day I may write about the last 10 to 12 years of surviving this miserable cancer but do I think the book is worth printing I don't know but don't we all want to leave a little something of us behind when we die.  I guess I do have an ego after all.  One thing I do know if it does go to print and makes some money, research for meso will certainly get some cash.

The week has had it's ups and downs but today as usual I plodded over the fields with Bear and Lexi.  I couldn't believe the height of the grass nor the amount of ferns we now have.  If the field keeps growing like this and we had some sun I would have thought I was in the jungles of Venezuela, not the fields of England.  No wild life today, no Deer hiding in the grass, the birds were even quiet.  Such a disappointment.

We came home and gave Bear and Lexi a blast with the blower, the amount of dead skin Bear has is unreal, but I did notice he is getting a bald patch under his front leg.  Maybe he sweats too much and the hair has stopped growing.  A visit to the vets when we return from holiday I think.  Although no red marks, spots or blemishes I don't think he should be bald there.

My stomach has been playing up badly again with every morning that yak feeling, my ribs are getting tight too but I am still here and hopefully will be this time next year.  Just wish we could wake up and feel great instead of waking up feeling crap.

I tried to join facebook but think I have done it wrong, I thought I could make a page but I don't know what happened to it or my account.  I must have a poor IQ if I can't even get facebook to work for me, what hope to I have in the future as I once again start to update all the works databases with the current software.  I use to believe if it still works don't fix it, but as time goes on with software changes you have to revamp every three to four years, although one database I created back in 2000 is still working.

Five days until we go on holiday, the thought of sun on my bones is driving me forward, shame it will only last a few days.  I can't believe we are already into the 2nd week of July and still no summer sun. 

I wish I could bring some back, especially for Amanda and Ray, a glass of wine in the garden watching the sun go down after a spending hours in the garden is the perfect way to end the day.  I'll keep praying, as my Canadian friend said in an email do we only know how to rain dance in this country?  I guess we don't even have to try, it comes naturally.  Still can't believe there's still a hose pipe ban in parts of England, are they kidding!!