Tuesday, 30 April 2013
I burnt when normally my skin wouldn't even notice, it's the first time it has seen sunshine and those precious damaged chemo cells have never had sun on them before. People and here I mean those around us, think they know how we feel, think because we are inactive, don't have anything wrong, they don't seem to accept that our body is working twice as hard to keep us in inactive, that we are trying our hardest to be normal, but tonight I think I have fallen off that emotional washing line, maybe I haven't changed the sheets for a long time and the line has got tight, tonight it sagged and hit rock bottom. If I hear bless you one more time I swear I could commit murder!
But I'm on holiday so I should be happy, but holidays can be tiring, especially a cruise plus it's a place of food, walk, food, talk, shower (again) food, drink bed, shower, breakfast and on and on, I feel like a spoilt brat and probably am acting like one but I feel like I don't live my life for me, maybe tomorrow I will feel different but here now at present I feel like I am an imposter, the smile is false, the person inside just wants to shout stop the world I want to get off!
Thursday, 25 April 2013
We have intermittent Internet service so have had a hard time downloading Facebook although I have logged in I can't see anything just keeps loading. To my fellow warrior Mavis I hope she has digested her bad news and put some plan of action into her thoughts. Being told your meso is back is never easy then wondering what you can do is harder still. We don't have the choices on treatments that others have. I know I put back my own treatment when the meso was back in 2010, but again each case is different, hence making mesothelioma the killer cancer.
Well we have just docked after sailing all night, Mykonos looks quite inviting, when I worked on Santorini a friend worked here but that was some 28 years ago (at least) like all islands changes will have occurred.
Better get ready, breakfast then off to discover the island.
News from the med signing off.
Sunday, 21 April 2013
Wednesday, 17 April 2013
I asked a friend in the States to write about why Lawyers are important in the states
Lawyers Can help Mesothelioma Patients Get Much Needed Financial Relief
We may condemn them but without them sponsoring Mesothelioma websites or research foundations we would be short on information and organisations like MARF wouldn't be able to carry out their help to mesothelioma sufferers.
Who are Belluck & Fox, well they are the lawyers who keep Mesotheliomahelp online.
Sunday, 14 April 2013
Saturday, 13 April 2013
Friday, 12 April 2013
I have been requested to ask you all to sign a petition, Please read below and if you can possibly help then do so. You can also sign here without leaving an address or location.
Recently, asbestos companies have been using their political influence to introduce a new bill. It is called the “Furthering Asbestos Claim Transparency Act” (FACT Act), and it will delay, and in some cases, deny justice and badly needed compensation to people suffering from asbestos-related diseases. You can find more information on the bill here.
Because of your influence and experience in the online cancer community, I am reaching out to you to ask for your help. I am a spokesperson for the Asbestos Cancer Victims’ Rights Campaign (http://cancervictimsrights.org). The ACVRC is a national campaign dedicated to protecting the rights of cancer victims and their families. I hope that you will join our fight to defeat this unfair legislation. Here are a couple simple steps you can take to make a difference:
Sunday, 7 April 2013
Our hols are coming up and I must start thinking about putting the summer clothes out, I am becoming lazy where movement is concerned. I just can't seem to pull energy together to do the things I could. I just seem to lack enthusiasm for things at the moment, but am sure that is down to no sun!
My meso had better stay away from my pericardium this year, I need a long flight in November to catch some warmth to get me through the long winter months!.
To everyone struggling with meso treatments my thoughts are with you, to those of us who are inactive but stable, let us keep it that way. Special thoughts to Tess at the moment and to Mavis who is waiting those all important scan results.