If Meso was the supermarket and my basket - sorry trolley - was my treatments it would go something like this
1 VAT
2 Pluerodesis
1 Decortication
11 doses of Chemo
12 zaps of Radiotherapy
6 Cryo-ablations
But now I am passing the special offers aisle and the big question is do I take the one and only thing on offer
A new trial of MEK - hasn't been released to the public yet, only 4 testers tried with varying problems
Trouble is if I was in the supermarket I wouldn't pick up the trial on offer but real life doesn't work that way and the bottle with my name on won't have a shelf life for very long.
I have a further week to think about it before hitting the checkout counter.
We went to see the trial doctor yesterday and she didn't seem to be the charismatic person she was the first time and this kind of put me off signing the dotted line.
This is my journey through treatments for Mesothelioma and daily life. I hope you can share the frustration, laughter and tears with me through this battle of living with mesothelioma. Janet Egerton
1 comment:
hi Jan,
interesting to hear about the trial, appreciate not much info on it here but as we usually lag behind the USA, is there more info from testing over there or in Austrailia that would help you make up your mind.
I do think with these things it helps to have confidence in the doctor to see you as a person rather than a test specimen .
The whole person not just the disease.
Good luck with the research
enjoy the weekend
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